The National Paediatric Diabetes Audit Report 2013-14 published by the Royal College of Paediatrics and Child Health and the Healthcare Quality Improvement Partnership indicates that fewer than 6% of children living with diabetes in England receive care consistent with published guidelines and only 46% receive any structured education about their condition. Preventable diabetic emergencies and deaths are the consequence.
'Living with...' aims to develop digital learning for children and young people living with long-term health conditions as well as those caring for a family member with long-term health conditions. We aim to promote understanding about long-term health conditions and improve self care and ultimately health outcomes.
How it works - for children with long-term conditions
Having compiled an extensive list of long-term health conditions (for example, diabetes, asthma, epilepsy), we apply for funding or seek sponsorship to develop two series of digital learning resources about each condition; one for children and one for young people.
Each digital learning series will:
We apply for funding or seek sponsorship to develop two series of digital learning resources about each condition; one for children and one for young people.
Each digital learning series will:
Each digital learning resource has an in-built anonymous evaluation that enables us to evaluate the experiences of children and young people using the resources. Collaborative work with the NHS will also involve the distribution of online questionnaires to healthcare professionals working with children and young people utilising the resources to measure their perceived impact. Where possible, we aim to also gather impact data from parents through an online questionnaire.
We are currently developing free resources for children and young people living with diabetes.